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You are not alone – continence, bladder and bowel support groups

Join a community and meet people who share your experience. If you cannot find a community that matches your needs in the below list, feel free to contact us and we will do our best to direct you to a suitable one.

Continence support groups

Many people with bladder and bowel conditions find it helpful to share experiences and learn how others have coped with their situation. There are many support organisations and charities that provide phone support and online resources to help you. 


It's up to you how you become involved. Some people like the anonymity of the web while others prefer phone or face to face support. The following list of organisations provide support. Coloplast and Coloplast Charter are also ready to answer any questions you may have on bladder management products. 

 

Association for Continence Advice
www.aca.uk.com 

 

Association for Spina Bifida and Hydrocephalus
www.asbah.org

 

ASPIRE 

www.aspire.org.uk
Tel: 020 8954 5759
Email: info@aspire.org.uk 

 

Back up Trust 

www.backuptrust.org.uk
Tel: 020 8875 1805
Email: admin@backuptrust.org.uk 

 

The Bladder & Bowel Foundation (B&BF) 

www.bladderandbowelfoundation.org
Tel: 01536 533255
Helpline: Tel: 0845 345 0165
General Enquiries: Tel: 01536 533255
Email: info@bladderandbowelfoundation.org 

  

ERIC - The Children's Bowel & Bladder Charity 

www.eric.org.uk 
Helpline: Tel: 0845 370 8008 

Great Britain Wheelchair Rugby
www.gbwr.org.uk 

 

Incontinence Knowledge Center
www.incontinencenet.org


Mitrofanoff Support
https://www.mitrofanoffsupport.org.uk/ 

MS-UK 

www.ms-uk.org
Free Information and Advice Line: Tel: 0800 783 0518 

 

Multiple Sclerosis Trust 

Tel: 01462 476700
Free Phone Information Service: 0800 032 3839
Email: info@mstrust.org.uk 

 

Motor Neurone Disease Association 

www.mndassociation.org 
Tel: 01604 250505
Email: enquiries@mndassociation.org 

 

MND Connect 

Tel: 08457 626262
Email: mndconnect@mndassociation.org 

 

National Multiple Sclerosis Society
www.nmss.org/

NHS Choices - Urinary incontinence guidance
http://www.nhs.uk/Conditions/Incontinence-urinary/    


Shine Charity 

www.shinecharity.org.uk 
Tel: 01733 555988 

 

Spinal Injuries Association 

www.spinal.co.uk
SIA Freephone Advice Line 0800 980 0501
Email: adviceline@spinal.co.uk 

 

Spinal Injuries Scotland 

www.sisonline.org
Tel: 0141 314 0056
Helpline: 0800 0132 305
Email: info@sisonline.org 

 

Spinal Research 

Tel: 01483 898786 

 
Stroke Association 

Tel: 0303 3033 100* (Monday – Friday, 9am – 5pm)
Email: info@stroke.org.uk 

 

Stroke Helpline and information Service 

Tel: 01527 903 903
Email: helpline.volunteer@stroke.org.uk